To the Cruel Disease That Tried to Break Me: You Failed

Dear Dysferlinopathy,

I bet you thought you could break me.

You came into my life after I graduated from college, an unwelcome visitor when I was just beginning to experience all the world had to offer. You took the dreams I had for my life and threw them to the ground. Spit on them. Buried them in the same dirt I would fall facedown on years later.

You attacked my muscles slowly at first, just subtly enough for me to shrug it off as laziness and fatigue. I would work out hard, but you kept coming back harder. Eventually I would learn that the more I tried to preserve my muscle mass, the more you would destroy my muscle cells. You’re a cruel disease. You killed my cells when I was active. You killed my cells when I was inactive.

Three years ago, you almost broke my spirit. Falling face-first onto the sidewalk for the first time – you almost had me. The gravel, the blood on my hands, the torn jeans — those were minor inconveniences compared to the emotional toll it took on me. I’ve never felt so down in my life.

Continue reading the full story on The MIGHTY here.

WILAB LOVES is a series of articles and blog posts from across the web that Women’s iLab supports. This article was written by Chris Anselmo and published on


HeadshotChris Anselmo is a first year full-time MBA student at Boston College. Prior to business school, Chris was senior analyst at Ad Tech startup, Visible Measures. Chris is also active in the muscular dystrophy community as a blogger and patient advocate.
Read more about and from the author: Chris’ WiLab Profile